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Post by aubrey on Aug 17, 2012 19:57:26 GMT
But only one of them working (though that one's working like a geyser).
Well, I thought that if I got the call I'd be able to tell you on the little tv phone internet things you can hire at the hospital, but you can't get messageboards on them any more (you used to be able to).
Anyway, I have a new kidney, and it's working pretty well so far.
More tomorrow as I'm knackered just now.
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Post by bonbonlarue on Aug 17, 2012 20:38:45 GMT
..and I hope you take good care of it....  x bon |
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Post by riotgrrl on Aug 18, 2012 0:20:58 GMT
Oh Aubrey, I hope this is the good news it sounds like. Will you be returned to full health, or will you always be limited now? I'm so happy about it anyway. XXX
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Post by aubrey on Aug 18, 2012 5:43:45 GMT
Thanks.
Riot, I don't know. Better, in any case.
I have to drink a lot now. And pee a lot. And keep a record of both. To this end I was up a lot in the night. I hope this bit doesn't last for long.
I had got rid of that email you sent everyone a bit back: if I didn't know an address the only way I could send an email on the hospital system was to reply to one on the inbox list. I still could have done this with yours if I'd had access to my full account - I managed to tell the Fall site in this way - but it was only a very sparse access, and even this wiped most of the emails I received while I was away from home (mostly updates of stuff, so not important) - even those I hadn't opened, but just seen were there.
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Post by jean on Aug 18, 2012 8:39:50 GMT
I'm wondering how long it will take some of the posters on MCL to suggest it's time you were down the Jobcentre.
(Fantastic news of course - I've already said that over there.)
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Post by aubrey on Aug 18, 2012 13:29:42 GMT
A few months yet - there's still a lot of stuff to do. The new kidney might not even take (probably will, though. I think).
I'll have to tell the DWP sometime, but I'm leaving it a bit before I do that, at least until I've stopped going to the clinic so often (3 times a week for a few weeks, then 2, etc etc.).
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Post by housesparrow on Aug 19, 2012 13:54:33 GMT
I was a bit surprised to learn that both old and useless kidneys are left in and wondered how they found the space for a spare. I can see why you need the old ones though if you are having to dialyse until the new one settles in.
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Post by jean on Aug 19, 2012 13:58:51 GMT
I was wondering about that - never thought about it before.
It must be strange having to drink so much when you've spent so long training yourself to drink very little.
(I was talking to some friends yesterday whose cat had suffered kidney failure. I said I knew someone who'd just had a new kidney. They misheard me and thought I meant a cat, not a person.)
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Post by Weyland on Aug 19, 2012 14:34:52 GMT
Anyway, I have a new kidney, and it's working pretty well so far. Great news, Aub! I was wondering about that just the other day. [By the way, it's your round.] |
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Post by everso on Aug 19, 2012 15:46:36 GMT
Fantastic news Aubs!!! I'm so pleased for you. Keep well. Ooo, that's made my day.  |
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Post by aubrey on Aug 20, 2012 1:09:32 GMT
Sorry, Housey - I don't have to dialyse - the three times a week appointments are to do lots of tests to see how well it is working, and to change the dressing (I think I was supposed to do that myself this weekend, but it looks ok - no leaking - and, frankly, the idea terrified me). Some people do have to dialyse for a while afterwards, though.
There's no need to take the old kidneys out as they don't rot or anything like that. The only reason would be neatness: but it would be a big operation (bigger than putting one in) and would create at least one and more likely two extra wounds to heal up, and to hurt (they seem to be more painful than a transplant wound: they're certainly a lot deeper (they go in from the front: I suppose that makes healing easier).
It is strange, drinking a lot: in a way it makes it not so pleasurable (though I am enjoying it). I find it - not weird but something - that I'm trying to give my new kidney a work-out over a weekend when it's so hot that I sweat about 1/3 of what I drink: at least, I hope that's what the discrepancy is (I have to measure everything, and make notes).
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Post by housesparrow on Aug 20, 2012 7:28:43 GMT
I'm glad you no longer have to dialyse; that was an assumption on my part: sorry.
Still, I am learning all kinds of things from your experience. I shall now go off to ask Mr Google what proportion of what we drink is meant to come out as urine, because it is something I never thought about beore.
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Post by aubrey on Aug 20, 2012 13:55:10 GMT
Actually, I'm going to miss dialysis: for four years, it was what I did. There were bad ones, when I couldn't leave afterwards for a couple of hours (or one time a whole night) due to low BP, and it was very limiting: but usually it was just lying about reading or watching films (or the whole of Inspector Morse on my little DVD player, while lying back in an electric reclining chair. Also, in November we were all going to move to a new, purpose-built unit, and I was looking forward to that.
When ex-dialysis patients came back to the unit to see the nurses, it always felt that those of us in the special chairs were part of an exclusive club.
Anyway, before I got ill I had intended to walk the London Ring - a series of 17 walks of about 5 miles each that take you all the way around London - and I might be able to do it now.
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Post by Weyland on Aug 20, 2012 14:14:42 GMT
Anyway, before I got ill I had intended to walk the London Ring - a series of 17 walks of about 5 miles each that take you all the way around London - and I might be able to do it now. When did you get ill, Aub? You and Ev should organise a Meet at a handy place on the Ring. I'd be there. |
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Post by aubrey on Aug 20, 2012 15:58:47 GMT
Winter 2006/7. I knew I was going to be made redundant in the new year, and that was when I had meant to do the walk: but in the meantime I was getting very breathless for some reason (which turned out to be a lung embolism). Then diagnosed with failing kidneys the following October, followed by a chest infection that turned into Pneumonia, then dialysis the Sept afterwards - 2008 (this is like the sigs on dialysis messageboards).
That'd be a good idea - Ev? Though I've probably lost the map I got all those years back. It won't be for a while, though.
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Post by Weyland on Aug 20, 2012 16:22:25 GMT
Winter 2006/7. I knew I was going to be made redundant in the new year, and that was when I had meant to do the walk: but in the meantime I was getting very breathless for some reason (which turned out to be a lung embolism). Then diagnosed with failing kidneys the following October, followed by a chest infection that turned into Pneumonia, then dialysis the Sept afterwards - 2008 (this is like the sigs on dialysis messageboards). Sheesh. Looks like you're finally getting the good luck God owes you. Et voilà! LINK. I'm even tempted. |
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Post by housesparrow on Aug 20, 2012 20:12:27 GMT
Me too. I got the details of it once and hoped to walk it with a friend, but she wasn't interested.
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Post by everso on Aug 20, 2012 22:30:25 GMT
Can I just say, Mr. E. and I were up in Edinburgh over the weekend (visiting our son) and he took us on a walk yesterday. We did six miles. It was great. We took in Dean Village, which is very Cotswoldy looking. However, today I can hardly move my legs, which is fortunate because we were in the car all day driving back.
Aubs, GWD are meeting next month at Blackfriars Pub. Any chance you might be able to make that?
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Post by riotgrrl on Aug 21, 2012 7:11:26 GMT
Can I just say, Mr. E. and I were up in Edinburgh over the weekend (visiting our son) and he took us on a walk yesterday. We did six miles. It was great. We took in Dean Village, which is very Cotswoldy looking. However, today I can hardly move my legs, which is fortunate because we were in the car all day driving back. Aubs, GWD are meeting next month at Blackfriars Pub. Any chance you might be able to make that? Pshaw. Six miles? I do that regularly of a weekend and sometimes of a weekday too. Many days I walk 2 miles into work and 2 miles home, and the 2- 3 miles between my house and my daughter's house. My ideal walk is about 7 - 10 miles, but the most I've done in a day is 19 miles, but that was quite far. |
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Post by riotgrrl on Aug 21, 2012 7:13:25 GMT
I'll walk that London ring thing. Do you do it one after the other or what?
Five miles in the morning, five miles in the afternoon, boozy lunch in the middle. That would be my ideal.
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